Today is actually 9/10/2021. It’s taking me this long to recover from Sarah’s third event. Talk about getting destroyed mentally and physically. It was 19 clear days since her second event which was four days more than between her first and second (15 days). I got a text from Sarah, “I had one arm thing, do I just go home at brunch to rest or stay?” My response, “go to nurses office now”. “I’ll come get you”. Sarah responded, “I can just wait till I …
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Today was a good day. Sarah did not go to school today only because her BFF didn’t from sunburn at the rodeo. Sarah looked tired all day anyway. She was able ot fall back asleep until 10am. We had two great keto meals today and all is well. I have started down a more detailed rabbit hole on magnesium. There seems to be much more than just anecdotal evidence magnesium can help prevent seizures. This makes me wonder why anyone should be deficient in this mineral. …
No issues at all on the second day of school. She woke and all was well and went to school on time. Today I decided to reach out to Dr. Nicole to see if we can do another round of test on Sarah to see if we are still having candida issues and perhaps a leaky gut. She responded right away, and the test kit was in the mail same day. We will also be doing another series of blood tests to be …
I have learned a lot in the last few weeks. We are still waiting for our first appointment with the specialist on August 24th. It took us several days to learn about hidden chemicals in our food and get rid of them. Now it was time for me to go down the next rabbit hole. Why is she sensitive to MSG? I keep going back to the question why she had arm tremors half-way into her Accutane treatment which we now know is a …
This is a big day because I think I may have discovered something. But before I talk about what I think is a big deal, I need to talk a little more about those neurons in the brain and what makes them tick. I had mentioned the excitatory neurons and the inhibitory neurons. It is time to introduce their names. Glutamate. What is Glutamate? Here is a simple description of Glutamate from Dr. Axe: Glutamate is the most abundant amino acid available in the human diet …
Today is the day we are supposed to leave for Ohio. Our flight is at 8:05am which meant we had to get up around 5:45 to get ready and go. I probably should have canceled this trip after the 1st event but maybe I was in denial or felt like I may have solved or helped mitigate the problem. I mean really, who do I think I am? How about a desperate father who wants nothing but the best for his children and would …
Afterward breaking our fast, we went to the farmers market and bought some vegetables, fresh Salman, halibut, and large gulf prawns. We also bought 3 or 4 baskets of strawberries. The keto diet does require some good planning to make tasty creative meals so eating doesn’t become so boring. I really don’t care what I eat; I could eat the same thing every day and it wouldn’t bother me, but I did not want to force my daughter to be like me in …
I do have notes in my folder for everyday but sometimes not much change in anything in terms of how she’s feeling or what we doing to hopefully prevent a second event. She’s been in a great mood and sleeping well. I know she is very close to being in ketosis if not already in it as she is not waking up hungry as she normally does every morning. This is a clear sign the body is becoming keto adapted. …
We were able to get into see Sarah’s general doctor in the afternoon once we explained what had happened. We knew we weren’t really going to learn anything there but that is where you must start to get a referral for a specialist. That is dumb. And of course, they couldn’t tell us when to expect the referral other than 3-5 days. UGH! 7/21/2021 We got the referral! It’s a “good news and bad news” thing. The appointment isn’t until …
It was a Sunday morning and I’m normally the first one up at around 8am and get that 1st cup of coffee. No matter what day it is my day always starts the same way. A big cup of water to get the juices flowing and that 1st cup of coffee while going through the morning’s emails and news events around the world. I heard Sarah’s toilet flush and I looked up at the clock and it was about 9am …
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