Although my optimism is increasing that we really may be on to the root cause, I’m still a realist and accept that it may not be the reasons for Sarah’s seizures. However, my hope increases day by day. Today is two months since her last event, or 60 days. This is very exciting to report! The doctors do not want to discuss the prospect of reducing her Keppra dosage. I get it. Why ruin a good thing at this point. Hopefully when we get to 3 …
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The good news is my entries are getting less and less. Today we are 54 days clear! There really hasn’t been much to update. Sarah has been in a great mood these past …
Dr. Nicole suggested cutting out the B-Complex completely since her B6 was so high. I suggested we just stop the evening dose basically cutting the B-Complex in half. Excerpt of the …
Yesterday was a big day for a couple reasons. Yesterday was Ricky’s 16th birthday and it was day 30 that Sarah has been clear! She is also pooping more regularly now. To …
Today is a Sunday. Coffee and continued research. Today’s focus is to assume the glutamate is still building up and what can be done to reduce/release excess. The good news is the research …
Today I’m still very excited about the last couple days of discovering and confirmation from a licensed Dr. Camile. I’m also very anxious because we are getting in that range of …
Today I sent Dr. Nicole and email: —- On Thu, 09 Sep 2021 07:10:02 AM -0700 <Sarah Pansegrau > wrote — Hi Dr. Nicole, A little update on Sarah. We …
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